It's uphill (and then down) for Ruari, 13

PUBLISHED: 02:01 17 April 2008 | UPDATED: 08:58 10 June 2010

A Brixington lad heading for Scafell Pike is set to conquer not only England's highest peak but his rare genetic disability as he raises funds for his biggest adventure yet a ski trip to the Rocky Mountains. Thirteen-year-old Ruairi Corr will be joined

A Brixington lad heading for Scafell Pike is set to conquer not only England's highest peak but his rare genetic disability as he raises funds for his biggest adventure yet - a ski trip to the Rocky Mountains.Thirteen-year-old Ruairi Corr will be joined by his family in the Lake District on May 29 as they seek £900 sponsorship to send the youngster to Colorado next year. Registered deaf/blind, Ruairi will accompany classmates from the West of England School and College for young people of little or no sight on the trip next year.The teenager has already begun skiing lessons, and dad Aaron, an Exmouth Community College worker, said: "He's a very good skier - he just doesn't know in which direction! We think Scafell Pike could take twice the estimated length of time to climb for us, but it is all about the sense of achievement."The 978-metre climb marks the second mountainous effort by Ruairi who, along with younger brother Tom, has the rare genetic disease adrenoleukodystropheny - made famous in the film Lorenzo's Oil.The Corr family, who have scaled Mount Snowdon together, face a big challenge on the climb. Mum Deirdre has MS symptoms from the same condition, but will be well supported by Aaron and daughters Aisling, 14, and Sinead, nine.The family moved to Exmouth from Ireland in 2002 in order to send Ruairi , who has epilepsy and complex medical needs, to the West of England School.Both brothers owe much of their opportunities to bone marrow transplants - Ruairi's from big sister Aisling, and Tom's from the only matching registered UK donor. Mr and Mrs Corr encouraged more people to sign up for bone marrow transplant - which costs little to the donor and can arrest the progressive effects of the condition. To sponsor Ruairi , visit his fundraising website www.justgiving.com/ruairicorr, or contact the West of England School on (01392) 454200.


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