Supermum to jump out of first plane trip

11:30 21 February 2012

Beverley Roberts and her daughter Amelia Rose. Picture by Alex Walton. Ref exe 3280-07-12AW. To order your copy of this photograph, go to www.exmouthjournal.co.uk and click on myphotos24

Beverley Roberts and her daughter Amelia Rose. Picture by Alex Walton. Ref exe 3280-07-12AW. To order your copy of this photograph, go to www.exmouthjournal.co.uk and click on myphotos24

Archant

Supermum Beverely Roberts is to jump from an aeroplane in a tandem skydive to raise funds and awareness for Battens disease

Lympstone super mum Beverley Roberts is so inspired by her terminally-ill daughter’s strength and courage she will plunge thousands of feet from an aeroplane to help others suffering from the same ‘cruel disease’.

Doctors told single mum Beverley her six-year-old daughter Amelia Rose, of Gibraltar Road, has a life expectancy of just 12, after she was recently diagnosed with the rare and fatal Battens disease.

Determined not to dwell on what the future holds, mum-of-three Beverley, 38, has drawn on Amelia Rose’s zest for life and on March 18 – the youngster’s birthday - will tandem skydive from an aeroplane to raise funds for research, while highlighting the degenerative neurological disease.

Beverley, who has single-handedly raised Honiton Mill Water School pupil Amelia Rose since she was six weeks old, hopes those touched by her daughter’s story will sponsor her aerial efforts.

She has never before been in an aeroplane, but said Amelia Rose’s ‘amazing’ spirit and day-to-day bravery had given her, and a group of friends, the courage to take the plunge.

Full-time mum Beverley said her daughter had defied medics and cheated death.

“She’s amazing, she has shocked the doctors,” said Beverley.” While she’s like that it gives me the hope and the strength to keep going for her and believe that we will get the cure - as long as I keep doing what I can to raise awareness and get the money rolling in for the scientists’ research.

“I have never even been in an aeroplane before. I am just going to go for it -whatever it takes.”

When Amelia Rose was born her mum had no idea her beautiful baby faced such a struggle for life.

When the clumsy toddler began displaying behavioural problems, Beverley suspected her daughter was autistic.

Medical tests were carried out when Amelia Rose had problems swallowing and walking, and the family’s life was turned upside down when doctors diagnosed Battens disease.

The once carefree youngster, who ran around like any other child, was soon confined to a wheelchair when the disease robbed her of her ability to walk. Blindness soon followed, as did epileptic fits and an inability to swallow food.

But it was during a routine hospital stay that Beverley’s daughter suffered complications and was placed in a coma in intensive care.

The youngster’s mum was repeatedly asked by doctors to consider switching off life support.

Now the family, who spent a ‘magical’ Christmas at Little Bridge House children’s hospice , say time with Amelia Rose is ‘precious’.

Beverley said: “I just couldn’t accept what they were telling me. When they were saying it, I was thinking ‘God, how can you ask me this? She will fight back’.

“Her spirit is so strong and she just fought back. If she can fight back, we will fight for her. Her spirit just shines, she’s amazing.

“Every moment is precious. I have had to arrange end of life care but I can’t think about that.”

● Sponsor Beverley at: www.justgiving.com/teams/bevroberts

0 comments

Other News Stories

37 minutes ago
The Morris Minor owners club car show took place at the weekend. John, Susannah, Julie, Samuel and Margaret Dawkins with the family 1968 Morris Minor convertible. Ref exe 34-16AW 4357. Picture: Alex Walton.

A classic car show hit top gear in Exmouth as it raised money for Devon Air Ambulance.

Read more
06:30
Pictured here is Sue Stoneman, trustee of the charity receiving, a cheque from the winning netball team, The Comets.

The Exmouth and District Netball League’s recent tournament to celebrate the competition’s 30th anniversary raised £300 for charity.

Read more
Yesterday, 12:30

Firefighters who recently attended a small electrical blaze at a home in Exmouth are urging people to use the correct equipment when charging up mobile phones.

Read more
Yesterday, 06:30
Artwork, installed at DJ's Cafe by artists 'Franksy', has now been taken down by the district council

Disappointment has been expressed over the district council’s decision to remove artwork which decorated a boarded-up seafront café.

Read more
Fri, 12:52

Emergency services were called out this morning after a collision involving two cars in Budleigh Salterton.

Read more
Fri, 12:30
Ollie holding his cards next to his mum Karen.

When single mum Karen Jones discovered her autistic son making himself birthday cards because he has no friends, she set upon a crusade – appealing to strangers to make his special day one to remember.

Read more
Fri, 06:30

A plan to demolish two seafront attractions has been given the green light by the district council.

Read more
Thu, 13:43

A popular Exeter burger bar is coming to Exmouth to take over the kitchen at The Grapevine.

Read more
Thu, 12:38
High achievers in GCSEs at Exmouth Community College.

There were euphoric scenes as Exmouth Community College pupils celebrated their GCSE results this morning.

Read more
Thu, 12:30
Richard Luxton, whose wife Margaret was killed in a coach crash at Morval, Cornwall, in 2014.

The husband of an Exmouth woman killed on a coach trip has said he and his family will never get over her death.

Read more

Local Weather

Partly Cloudy

Partly Cloudy

max temp: 22°C

min temp: 14°C

Most Read News

Useful Links

Advertise in the Paper
Submit a Story
Subscriptions Order
Competitions
Photo Orders
Family notices
iwitness24
Google Plus
Facebook
Twitter
Reader Travel

Family Notices 24

Read Online

Image
Read the Exmouth Journal e-edition E-edition

Newsletter Sign Up

Local business directory

Exmouth's trusted business finder

HOT JOBS

Show Job Lists


Find planning applications