Don't miss a story sign up to Exmouth Journal's FREE daily newsletter CLICK HERE

Supermum to jump out of first plane trip

11:30 21 February 2012

Beverley Roberts and her daughter Amelia Rose. Picture by Alex Walton. Ref exe 3280-07-12AW. To order your copy of this photograph, go to www.exmouthjournal.co.uk and click on myphotos24

Beverley Roberts and her daughter Amelia Rose. Picture by Alex Walton. Ref exe 3280-07-12AW. To order your copy of this photograph, go to www.exmouthjournal.co.uk and click on myphotos24

Archant

Supermum Beverely Roberts is to jump from an aeroplane in a tandem skydive to raise funds and awareness for Battens disease

Lympstone super mum Beverley Roberts is so inspired by her terminally-ill daughter’s strength and courage she will plunge thousands of feet from an aeroplane to help others suffering from the same ‘cruel disease’.

Doctors told single mum Beverley her six-year-old daughter Amelia Rose, of Gibraltar Road, has a life expectancy of just 12, after she was recently diagnosed with the rare and fatal Battens disease.

Determined not to dwell on what the future holds, mum-of-three Beverley, 38, has drawn on Amelia Rose’s zest for life and on March 18 – the youngster’s birthday - will tandem skydive from an aeroplane to raise funds for research, while highlighting the degenerative neurological disease.

Beverley, who has single-handedly raised Honiton Mill Water School pupil Amelia Rose since she was six weeks old, hopes those touched by her daughter’s story will sponsor her aerial efforts.

She has never before been in an aeroplane, but said Amelia Rose’s ‘amazing’ spirit and day-to-day bravery had given her, and a group of friends, the courage to take the plunge.

Full-time mum Beverley said her daughter had defied medics and cheated death.

“She’s amazing, she has shocked the doctors,” said Beverley.” While she’s like that it gives me the hope and the strength to keep going for her and believe that we will get the cure - as long as I keep doing what I can to raise awareness and get the money rolling in for the scientists’ research.

“I have never even been in an aeroplane before. I am just going to go for it -whatever it takes.”

When Amelia Rose was born her mum had no idea her beautiful baby faced such a struggle for life.

When the clumsy toddler began displaying behavioural problems, Beverley suspected her daughter was autistic.

Medical tests were carried out when Amelia Rose had problems swallowing and walking, and the family’s life was turned upside down when doctors diagnosed Battens disease.

The once carefree youngster, who ran around like any other child, was soon confined to a wheelchair when the disease robbed her of her ability to walk. Blindness soon followed, as did epileptic fits and an inability to swallow food.

But it was during a routine hospital stay that Beverley’s daughter suffered complications and was placed in a coma in intensive care.

The youngster’s mum was repeatedly asked by doctors to consider switching off life support.

Now the family, who spent a ‘magical’ Christmas at Little Bridge House children’s hospice , say time with Amelia Rose is ‘precious’.

Beverley said: “I just couldn’t accept what they were telling me. When they were saying it, I was thinking ‘God, how can you ask me this? She will fight back’.

“Her spirit is so strong and she just fought back. If she can fight back, we will fight for her. Her spirit just shines, she’s amazing.

“Every moment is precious. I have had to arrange end of life care but I can’t think about that.”

● Sponsor Beverley at: www.justgiving.com/teams/bevroberts

0 comments

Other News Stories

12:30
St. Peter's Primary School pupils had a go at making healthy barbecue Kebabs. Ryan, Gareth, Miia and Emily team up to create some tasty kebabs.  Ref exb 28-16AW 2882. Picture: Alex Walton

A healthy eating week, which culminated in a barbecue, has contributed towards children eating more lunchtime vegetables.

Read more
11:03

A Judge who branded a man armed with a knife during a row in Exmouth a ‘thorough nuisance’, has recommended drug and drink support to stop him reoffending

Read more
Sarka Andersonova (left) of Carousel Childcare in Budleigh with some of the children. Ref exb 20-16TI 1155. Picture: Terry Ife

Budleigh Salterton parents face a race against time to save the town’s early years child care provider from leaving the town.

Read more
The annual Race for Life challenge at Westpoint

The organisers of a Race for Life event held in Exeter at the weekend have hailed the annual challenge a success.

Read more
Yesterday, 12:30
Bassetts Farm School

Youngsters at four primary schools in Exmouth have had a donation of footballs from a town club.

Read more
Yesterday, 06:30

Fairy magic caught the imagination of youngsters as they searched around a trail for miniature doors hidden around Phear Park.

Read more
Saturday, July 23, 2016

District council bosses have made a U-turn on a decision to not replace a seat at a Budleigh Salterton bus shelter.

Read more
Friday, July 22, 2016
Branscombe primary school children were among other local school's who scooped a prize in the school's garden competition presented by Lady Cave and organised by Sidmouth Rotary. Ref shb 28-16SH 2067. Picture: Simon Horn.

Branscombe Primary School pupils are among the winners of a gardening competition.

Read more
Friday, July 22, 2016
Dinosaurs in Manor Gardens. Ref exe 29-16TI 4617. Picture: Terry Ife

Exmouth’s dinosaur invasion is spreading fast, with the prehistoric creatures now popping up at the Manor Gardens and on the seafront.

Read more
Friday, July 22, 2016
Cyclists from CDE raised £4,000 for FORCE

A group of cyclists from Clinton Devon Estates (CDE)have raised more than £4,000 for FORCE cancer charity, writes Daniel Wilkins.

Read more

Local Weather

Partly Cloudy

Partly Cloudy

max temp: 21°C

min temp: 12°C

Most Read News

Great British Life

Great British Life

Useful Links

Advertise in the Paper
Submit a Story
Subscriptions Order
Competitions
Photo Orders
Family notices
iwitness24
Google Plus
Facebook
Twitter
Reader Travel

Family Notices 24

Read Online

Image
Read the Exmouth Journal e-edition E-edition

Newsletter Sign Up

Local business directory

Exmouth's trusted business finder

HOT JOBS

Show Job Lists


Find planning applications