Don't miss a story sign up to Exmouth Journal's FREE daily newsletter CLICK HERE

Help needed to start new charity

11:36 19 November 2012

A Budleigh woman is looking for help setting up a new charity to help people with a chronic pain condition.

Anya Darr is behind Fibro Fighters, which will provide services for people with fibromyalgia

Anya has suffered from the condition herself for 21 years, and while there is no cure, she says she is now able to manage the pain thanks to structured exercise, and sessions with an acupuncture and massage therapist.

The aim of the charity is to provide these services to fibromyalgia sufferers in the Exmouth and Budleigh areas.

Anya already has the therapist on board, along with someone to run the exercise sessions, but she is now looking for a charity chairman, secretary and treasurer, along with other steering committee members.

Anya said: “What they have to offer at hospitals [for fibromyalgia] is very limited. What tends to happen is people get very isolated as they stay at home in pain and get more immobile, and one of the things you have to do is stay as fit and active as you can or it causes a downwards spiral, which is easier said than done as often fatigue accompanies it.”

Anya says the exercise sessions will be tailored to individual patients, who will be given stepped exercise programmes.

“Most exercise classes which are recommended, start at a level that’s too high, so people just drop out.

“We will give every person a personalised activity plan. If they can only walk 100 yards, we’ll try to get them to 105 yards.

“The long term aim is to help people get to the point where they can access mainstream provision and could have the confidence to do that.”

Anya says that for committee members, commitment and enthusiasm are more important than experience, and, having seen similar schemes in London, she hopes that Fibro Fighters will be a pilot project for spreading the idea to other areas.

To get involved, contact therapist Ali Coledge by calling 01395 443274 or 07516 422379, or email ac_acupuncture@hotmail.co.uk.

0 comments

Other News Stories

Yesterday, 12:30
Evacuee Percy Cook (centre) pictured with Brian Curryer and Percy's sister Daisy Vickers.

A man evacuated to Exmouth during World War Two has returned to the town - and has struck up a friendship with another generation of the family which looked after him.

Read more
Fri, 16:12

Fly tippers could face fixed penalties of £400 under new powers approved by East Devon District Council.

Read more
Fri, 16:06
The Range is now open at Exmouth's Liverton Park much to Captain Range's delight. Ref exe 25-16SH 9725. Picture: Simon Horn.

Pictures of the new store

Read more
Fri, 15:21
Item stolen from a home in Exton.

Police are appealing for information after a burglary at a property in Exton.

Read more
Fri, 13:50
Ian MacQueen, chairman of Exmouth Chamber of Trade and Commerce. Picture by Alex Walton. Ref exe 8104-47-11AW

The chairman of Exmouth Chamber of Commerce says businesses will want to see market stability and political clarity, after the vote by the UK to leave the EU.

Read more
Fri, 13:22

The chairman of Budleigh Salterton Chamber of Commerce has called on residents to support local shops, following the Leave vote in the EU referendum.

Read more
Fri, 12:30
Active Mums Cycling project

Mums in Exmouth are jumping on their bikes in order to encourage women to increase the amount they cycle for leisure and active travel.

Read more
Fri, 09:32
The EU Referendum results are in. Picture: AP Photo/Vadim Ghirda

In the wake of Britain voting to leave the European Union this morning, the leader of East Devon District Council (EDDC) says he ‘trusts the electorate’.

Read more
Fri, 08:56
MEP Julie Girling.

Julie Girling and Molly Scott-Cato both released statements following the EU referendum result.

Read more
Fri, 08:52
The EU Referendum results are in. Picture: AP Photo/Vadim Ghirda

Hugo Swire MP said people must work together to secure the best deal for Britain, following David Cameron’s announcement that he will step down as PM.

Read more

Local Weather

Overcast

Overcast

max temp: 17°C

min temp: 15°C

Most Read News

Great British Life

Great British Life

Useful Links

Advertise in the Paper
Submit a Story
Subscriptions Order
Competitions
Photo Orders
Family notices
iwitness24
Google Plus
Facebook
Twitter
Reader Travel

Family Notices 24

Read Online

Image
Read the Exmouth Journal e-edition E-edition

Newsletter Sign Up

Local business directory

Exmouth's trusted business finder

HOT JOBS

Show Job Lists


Find planning applications