Help needed to start new charity

11:36 19 November 2012

A Budleigh woman is looking for help setting up a new charity to help people with a chronic pain condition.

Anya Darr is behind Fibro Fighters, which will provide services for people with fibromyalgia

Anya has suffered from the condition herself for 21 years, and while there is no cure, she says she is now able to manage the pain thanks to structured exercise, and sessions with an acupuncture and massage therapist.

The aim of the charity is to provide these services to fibromyalgia sufferers in the Exmouth and Budleigh areas.

Anya already has the therapist on board, along with someone to run the exercise sessions, but she is now looking for a charity chairman, secretary and treasurer, along with other steering committee members.

Anya said: “What they have to offer at hospitals [for fibromyalgia] is very limited. What tends to happen is people get very isolated as they stay at home in pain and get more immobile, and one of the things you have to do is stay as fit and active as you can or it causes a downwards spiral, which is easier said than done as often fatigue accompanies it.”

Anya says the exercise sessions will be tailored to individual patients, who will be given stepped exercise programmes.

“Most exercise classes which are recommended, start at a level that’s too high, so people just drop out.

“We will give every person a personalised activity plan. If they can only walk 100 yards, we’ll try to get them to 105 yards.

“The long term aim is to help people get to the point where they can access mainstream provision and could have the confidence to do that.”

Anya says that for committee members, commitment and enthusiasm are more important than experience, and, having seen similar schemes in London, she hopes that Fibro Fighters will be a pilot project for spreading the idea to other areas.

To get involved, contact therapist Ali Coledge by calling 01395 443274 or 07516 422379, or email ac_acupuncture@hotmail.co.uk.

0 comments

Other News Stories

9 minutes ago

District chiefs are facing criticism for ‘ignoring’ a town poll calling for more consultation on proposed seafront redevelopment.

Read more
07:00

Residents are being asked for their help to draw up a new pattern of council wards for East Devon District Council.

Read more
Yesterday, 11:18

The second Exmouth Spirit of the Exe and Mussel Festival was held on Saturday on the sea front

Read more
Yesterday, 06:30

Seafront campaigners have questioned the need to demolish a popular attraction after it was revealed that the site could be open for temporary use next summer.

Read more
Sunday, September 25, 2016

A third of ‘Jurassic Ambassadors’ who volunteer their time to promote the historic coastline are from East Devon.

Read more
Sunday, September 25, 2016

Healthy eating has paid off for Littleham Primary School as it has been recognised for its hard work.

Read more
Sunday, September 25, 2016

A tanning company whose shop in Exmouth was ravaged by a fire earlier this year is expecting to reopen at a new site next year.

Read more
Saturday, September 24, 2016

A Lympstone couple are hoping to bring some smiles to the faces of teenage villagers in the depths of Africa.

Read more
Saturday, September 24, 2016

Speed check volunteers between Knowle and Budleigh Salterton have defended their policy of putting out signs warning motorists of their presence.

Read more
Saturday, September 24, 2016

Anita Anderson never expected to see John again after their first date; little did she know they would celebrate their diamond wedding anniversary 62 years later.

Read more

Local Weather

Rain

Rain

max temp: 17°C

min temp: 16°C

Most Read News

Useful Links

Advertise in the Paper
Submit a Story
Subscriptions Order
Competitions
Photo Orders
Family notices
iwitness24
Google Plus
Facebook
Twitter
Reader Travel

Family Notices 24

Read Online

Image
Read the Exmouth Journal e-edition E-edition

Newsletter Sign Up

Local business directory

Exmouth's trusted business finder

HOT JOBS

Show Job Lists


Find planning applications