Kirsty and Jai Hague with their five month old daughter Jasmine. The couple have organised a fun day in aid of Headlines Craniofacial Support group. Picture by Alex Walton. Ref exe 4382-40-13AW. To order your copy of this photograph go to www.exmouthjournal.co.uk and click on Photo Orders
Friday, October 4, 2013
A Littleham couple whose daughter was born with a birth defect are holding a fundraiser for the charity which has supported them with her condition.
Kirsty and Jai Hague’s five-month-old daughter Jasmine will be undergoing surgery later this month to correct craniosynostosis, a fusion of bone plates in the skull which has caused Jasmine’s head to be pointed at the front.
Currently, Jasmine is not suffering any adverse affects from the condition, but there could be serious problems if she was left untreated.
Kirsty said: “When she was born, Jai noticed she had a funny-shaped head. The midwife thought it was just because she was born quite quickly.
“They came and took her off me about two hours later as she was having difficulty breathing. They took her to the neonatal unit, put her in an incubator and that’s when they noticed about her head.
“It doesn’t affect her in any way so far but they say it’s quite common to have other conditions with it like hearing loss and sight loss.”
The five-hour operation will see surgeons removing and reshaping a section of Jasmine’s skull, and refitting it with pins and plates.
Jai said: “They’ve said they can’t guarantee anything because the brain will be exposed, but if we don’t have it done it will make her worse.
“They’ve said to take as many pictures of her as possible, because she’ll look quite different when it’s done, and in a few years we won’t remember her looking like she does now.”
When she was originally diagnosed, Jasmine’s parents say they did not know much about her condition until they contacted the charity Headlines.
Kirsty said: “I asked for information as we weren’t really told everything at the hospital, just a basic outline of what it was.
“They explained everything to me about what it was and what other conditions we could have with it.
“It’s made it easier for me knowing exactly what it is that she’s got and is likely to go through in the future.
“They also run a family fun weekend every year for families and children who are affected – we’ve been invited to that next year.”
To say thank you, the couple, from Nelson Drive, are organising a family fun day in aid of Headlines at Liverton Copse Community Centre in Prince of Wales Drive, this Saturday (October 5) between 2pm and 5pm.
Games, stalls, a bouncy castle, sumo suits, and a tombola will be available, along with a raffle of donated prizes, including a pair of Exeter Chiefs tickets, and family tickets to the Eden Project and Dartmoor Zoo.